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MrsWoman
#1 Posted : Saturday, February 05, 2011 10:58:16 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/4/2009
Posts: 331
Location: South London
Hi all,


My ultrasound shows activity in one joint - I have no other RA symptoms a result in reducing my steriod doseage Does anyone know fi the synovial thickening reduce with drugs or is it irreversable? or is it something that is there all the time.

How often do people get ultrasound or all over RA check?

Lastly, How do you view the NRAS article advising that people with RA are more likely to have heart, lung and cancers than the rest of the population and die 10 years earlier. There wasnt anything suggestion on what level the RA is. The article I think was awareness so we can get checked out but I feel a hypondriac enough and my GP is quite conservative about any time of intervention so its more upset if one is healthy enough. I find it very hard to read such things as it makes me quite depressed. What do others think?

MW
LynW
#2 Posted : Saturday, February 05, 2011 11:39:01 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Morning MW Smile

Synovial thickening tends not to go on its own. What happens is the lining of the joint, the synovium, contains a fluid, synovial fluid, which helps with the movement of the joint and keeps the cartilage supple allowing it to cope with impact such as running. In RA the fluid can become thickened or irritated as result of the disease process. This causes stiffening of the joint and damage to the cartilage. In severe cases the lining of the joint, the synovium, will need to be removed by synovectomy. There is often a little thickening of the synovium in RA by the very nature of the disease process but in most cases it can be lived with without difficulty.

I have had RA for 23 years and am checked by the rheumatologist supposedly every 6 months (NICE guidelines for controlled disease); last year it stretched to 15 months! The only time I have had X-Rays or Scans is when I have suggested a particular joint problem. No regular tests as such have ever been performed despite having severe disease and much damage!

The next question about coronary problems and life expectancy is actually two! You should remember that some articles do not necessarily apply to everyone with RA! The reference to life expectancy is more to do with those, such as myself, who were diagnosed with RA more than ten years ago. At that time the drugs available were very limited, anti inflammatories, steroids, chloroquine, gold etc. These were very unlike the range of DMARDs and anti-tnfs available today. My first 14 years of disease were poorly controlled and as a result I have quite a lot of joint damage throughout my body. This poor control has led to a number of further problems such as heart/lung disease etc. This in turn limits life expectancy ... but I haven't drawn my last breath yet, I have things still to do and tales to tell for goodness sake!! With the modern drugs this aspect has largely gone out of the window and life expectancy is generally not shortened by controlled RA.

I remember reading the article about heart, lung and cancers, I think it was in a magazine. I'll have a look after lunch and see if I can find it. A search of the NRAS website may turn it up but I'm not sure!

And to finish, (hungry children waiting for feeding, not to mention miaowing kittens) please don't feel that you are being a hypochondriac ... everyone has their concerns with this wretched disease and you are entitled to expect reasonable answers to those worries from the people who treat us. Don't let it get you down; if your disease is controlled you are a winner! Smile

Lyn x

P.S. Sorry it's so long, I got carried away! I read a lot of stuff and like to be able to share it RollEyes
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

MrsWoman
#3 Posted : Saturday, February 05, 2011 12:14:11 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/4/2009
Posts: 331
Location: South London
Thank you Lyn for your response it was exactly what I was looking for. I suppose I feel like I am on high alert whenever I am reminded that I have RA and it has such an adverse effect and I get down about it. So to even think that the other possiblitlies is overwhelming. I think the NRAS article online was just updated last year was very general and found it unsettling, although I know they are meant to help.

The ultrasound operator (think hes a doctor not sure if he was a rheumatologist as i went into a general U/S department. he looked at the pictures and told me teh thickening was the amount to be expected and that there was moderate activity and he didnt see any erosions but he did the scan in less than 5 mins. I think if it had of being in a RA department he would have done both hands for comparison!.

I have gone back up to my normal doseage and will go and see my consultant earlier to discuss. I have been a it lax about my RA though and have carried on using my joints in an effort to have a semblance of a normal life. i have been wearing a splint and am wondering if hot and cold treatment will help my joints further,

Its most annoying as all over I have been more than fine the combination of making a large batch of relish and coming down on my dose seems to have aggrevated my radius bone and thumb joint.

But I do love little kittens....... life does have its sweet side...
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